Expecting chemo at Karmanos this past week for 4-5 days, an unexpected temp cancelled treatment and spun me into tests, blood cultures, extractions, and antibiotics. Waiting for discharge today, I “expect” to return within two weeks for the IV chemo I missed this week.
As a side note, either I am getting use to the food (doubtful), or it is actually improving … I am not saying it’s good, but it is improving :)
The Monday after Thanksgiving I go back into the hospital for five days of IV chemo treatment. I have had to psych myself up for this since I find it emotionally draining. Karmanos Cancer Center in Detroit is about an hour and a half away from my home which precludes most visitors. I am restricted to roaming one floor, towing my IV pole everywhere. This will be my 3rd stay and I’m getting to know the ins and outs of the place. The staff, especially the nurses are phenomenal. When it comes to hospital food, even though it gets a bad rap, I have found many hospitals to be vastly improving. That said, The food at Karmanos is hands down the worst I have ever had which adds to my stress level.
This week I came to learn this inpatient IV treatment is not a one time deal of five days, but to be done every three to four weeks through March. This is going to be a tough event for me … I need to work on coping strategies to mentally survive these week long treatments.
The docs are ready to start the next phase of aggressive IV chemo treatment. Blood counts are decent, this week I had another bone marrow biopsy but still waiting for the results. The next round of treatment more than likely will require re-admittance into the hospital. This waiting is manifesting with cooking. Making sure there are meals, and snacks ready for the taking while I’m gone. Of course I haven’t left yet, and we are eating pretty well. Caryn, made a Bourbon Pecan Pie, a crock pot of stew, and we both stuffed tortellini for use in a variety of dishes. Not knowing if I’ll be home for Thanksgiving, tonight we had a roast turkey dinner … so good :)
This is Allan writing, which is rare, I normally restrict my thoughts to my blog, “Salty Peas’. I worry about Caryn, she has so much on her plate … besides caring and worrying about me, she has “sissy’ she cares and worries about, and for. Caryn is always, “on-duty”, whether she is home, at work,…
I rarely, write on Caryn’s blog. She gives, and cares … she is my caregiver, she is my love.
Odd as it sounds I am more comfortable dealing with people since I have cancer (leukemia), than I ever was dealing with other people who had cancer, before my own.
The biggest thing that seems to help is reintroducing myself to friends and acquaintances that haven’t seen me since summer. I’ve lost close to 50 pounds, need a walker to steady myself, look relatively pale, and I’ve lost my hair (since August). People don’t recognize me, so I go up to them smiling, and as an example say, “Hi Steve, it’s Allan … Allan Coyle.” Most times there is a pause, a look of disbelief, then an easy conversation where I highlight what the diagnosis and prognosis is. From then on our encounters are much more “normal”, not always … but most times. We all have our secrets, we all have private matters, fears or monsters we try to deal with … each the best we can.
I am now following your wives' blog. What a journey you are going through. Pets are the best and I see why it would be hard not to have them around while going through treatment. Hope you are having a good day.
Generally mornings are best … I tend to over extend in the mornings :) Then slowly, slow down, napping a few times throughout the afternoon.
Please introduce yourself to Caryn. I already told her about your being from the UP. She spent many years, as an independent special Ed consultant, traveling across the whole UP.